Kayson was born with Alagilles syndrome and has been under the care of OU children’s . He has a lot of ups and downs and had a liver transplant when he was 6 . Along with 24 other surgeries and procedures. As of now kaysons kidneys are stage 3 and his new liver has been showing signs of rejection on and off. As of yesterday 6/18 he was put on a heart monitor for his high blood pressure and episodes he has been having .We are needing to get him to Cincinnati children’s hospital. They are the #1 hospital for alagilles research and can provide more answers for our many questions about our sons future. We live in a RV so we have a home already . We have a RV park willing to accept us when we get there. We are just needing help with fuel and any stops along the way we might need to take . Please help us get our boy to a better place for him . Thank you God bless
