My daughter, Izzabella “Izzy” Martin, is a bright and determined 19-year-old who dreams of becoming a 2nd grade teacher. Four years ago, Izzy was diagnosed with Juvenile Nephronophthisis, a rare genetic kidney disease that affects just one in a million people. Despite her diagnosis, Izzy has worked hard to maintain her kidney function, but now she urgently needs a transplant to survive.
Izzy’s illness has changed our lives in ways we never expected. She is currently unable to work due to her low kidney function and spends most days exhausted, unable to keep food down. She’s been referred to a surgeon for dialysis ports in case a donor isn’t found soon. Even through these challenges, Izzy’s faith and determination shine—she remains strong in her beliefs and continues to inspire everyone around her. My husband and I both work full time, and I’ve often taken on second jobs to help cover expenses. My husband has started the process to see if he can be a kidney donor for Izzy, and we are holding onto hope.
Our family is also facing another difficult journey, as I was recently diagnosed with stage 4 metastatic breast cancer. While our insurance will cover part of Izzy’s transplant, we are left with significant out-of-pocket costs, including 20% co-insurance, a required month-long stay in Denver after the surgery, and frequent travel for follow-up care. Izzy will also need lifelong medication to prevent organ rejection, with monthly costs that insurance won’t fully cover. We are reaching out for help to cover these urgent medical, travel, and living expenses so Izzy can get the transplant she needs and continue pursuing her dreams.
