Help Us Support Lily’s Journey with CDKL-5
Hi, we’re Lily’s family, and we’re reaching out with full hearts and hopeful spirits to ask for your help.
Our beautiful little girl, Lily, at 10 weeks old was diagnosed with a rare genetic disorder called CDKL5 Deficiency Disorder — a condition that affects brain development and causes seizures, developmental delays, and serious challenges with mobility, vision, and communication.
CDKL-5 is rare, and there is currently no cure — but there is hope. Lily shows us that every single day.
She is brave, bright, and full of light. Despite her daily struggles, Lily continues to smile, love, and teach us the true meaning of strength.
We are raising funds to help support Lily’s growing medical, therapy, and equipment needs, including:
• Ongoing specialized care
• Therapies not fully covered by insurance (Physical, occupational, and speech therapy)
• Adaptive equipment to help her grow, move, and thrive
• Future treatments or clinical trial opportunities
Every donation — big or small — helps lighten the load and brings Lily one step closer to better care and a brighter future. If you can’t give, sharing her story means the world to us.
We believe in Lily. We believe in her light. And with your help, we can give her every chance to shine.
From the bottom of our hearts — thank you for being part of Lily’s journey.
With love,
The Silva Family
#LilyInBloom #CDKL5Awareness
