Ayudame a recuperar mi movilidad – help me walk again

Mi nombre es Ramón castellano , actualmente tengo 23 años, pero he venido batallando con un tumor en la medula espinal desde hace más de 4 años, este estaba presionando la misma y me dejó completamente inmóvil en una silla dé ruedas, fui operado de emergencia y se logró sacar el tumor, al pasar el tiempo con terapias recupere mi movilidad, mi familia y yo estábamos felices. todo había salido bien , al pasar poco más de un año comence a sentir que de nuevo estaba teniendo dificultades para caminar y tomar cosas con las manos , día a día empeoraba , me repitieron la resonancia, el tumor había regresado, ya prácticamente de nuevo sin movimiento había q operarme de nuevo, en pabellón hubieron complicaciones con una arteria que se rompió y casi me lleva a la muerte , por este motivo el tumor no se pudo extirpar en su totalidad, fui a UCI varios días , salí de UCI y la herida se me abrió ,tuve q ser llevado de nuevo a pabellón y restaurar, después de unas semanas me dieron de alta , lastimosamente debido a una infección comencé a botar Líquido cefaloraquideo por una fístula , todo se complicó, y fui resuturado dos veces más , al fin con tratamiento y cuidados la fístula cerró supuestamente, sin embargo a pesar de las terapias y de los esfuerzos no logro recuperarme, si no al contrario día a día empeoró , ya no tengo nada de movilidad, y de nuevo me encuentro en silla de ruedas , al hacer de nuevo la resonancia encuentran la presencia de un pseudomeningocele (acumulación de Líquido cefaloraquideo) que está de nuevo comprimiendo mi medula , motivo por el cual me encuento está situación, debo ser intervenido de nuevo y de emergencia, ya que mi situación en cualquier momento puede empeorar, y está vez tienen q colocarme una válvula programable espinal, que tiene un costo de 3200$, solo la válvula, si contar con los gastos de quirófano, honorarios de los médicos , e insumos especiales entre otros , se calculan 10.000$ , por eso me veo en la necesidad de pedir ayuda , por favor , lo hago en nombre de Dios, agradezco su apoyo de ante mano y les doy las gracias infinitamente

My name is Ramón Castellano, I am currently 23 years old, but I have been battling a tumor in the spinal cord for more than 4 years, this was pressing on it and left me completely immobile in a wheelchair, I had emergency surgery and they managed to remove the tumor, as time went by with therapies I regained my mobility, my family and I were happy. everything had gone well, after a little over a year I began to feel that I was again having difficulty walking and picking things up with my hands, it got worse day by day, they repeated the MRI, the tumor had returned, now practically motionless again I had to undergo surgery again, in the operating room there were complications with an artery that broke and almost led to my death, for this reason the tumor could not be completely removed, I went to the ICU for several days, I left the ICU and the wound opened, I had to be taken back to the operating room and restored, after a few weeks I was discharged, unfortunately due to an infection I began to leak cerebrospinal fluid through a fistula, everything got complicated, and I was resutured two more times, finally with treatment and care the fistula supposedly closed, however despite the therapies and efforts I was unable to recover, on the contrary, day by day it got worse, I no longer have any mobility, and again I find myself in a wheelchair, when doing the MRI again they found the presence of a pseudomeningocele (accumulation of cerebrospinal fluid) that is again compressing my spinal cord, which is why I find myself in this situation, I must undergo another emergency operation, since my situation could worsen at any moment, and this time they have to place a programmable spinal valve, which costs $ 3,200, just the valve, without counting the costs of the operating room, doctors’ fees, and special supplies among others, it is estimated at $ 10,000, that is why I see the need to ask for help, please, I do it in the name of God, I appreciate your support in advance and I thank you infinitely




Organizer Yonexis Urdaneta

Murfreesboro, TN

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