My name is Toni Weedman. Our 6 year old daughter, Harley Rose was diagnosed with Papilledema on her eyes and Chiari malformation Oct 16th 2023. We have made more than 20 trips back and forth to Children’s Hospital in New Orleans with multiple tests being done. Through all these tests, they have yet to find a cause or treatment for our daughter. They have now recommended for us to go out of state to see a specialist. We are desperate to get answers for our daughter. Unfortunately, our insurance will not cover out of state. We are asking for help with travel, living, and medical bills as we aren’t sure how long we may be away. We would greatly appreciate anything you can do. Thank you and God Bless.
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